If you are an ovarian cancer survivor, a patient with ovarian cancer, or someone with a family member who has or had ovarian cancer, we would like to speak with you.

  • As you may know, ovarian cancer is the fifth leading cause of cancer death in US women.
  • Guidelines recommend genetic testing for all women with ovarian cancer and their at-risk relatives. However, fewer than a quarter are tested.

Our research team would like to hear people’s thoughts about genetic testing for cancer that runs in families, such as ovarian cancer. We hope this will help Kaiser Permanente Mid-Atlantic States to offer better support to patients who need genetic testing for cancer that runs in families.

Participation means taking part in a 90-minute one-on-one phone or video interview.
You will receive a $25 gift card for your participation.

Who is Eligible to Participate? 

Kaiser Permanente members who identify as Black, African American, or Afro-Caribbean, and /or Hispanic within one of these categories:

  • Have ovarian cancer
  • OR are ovarian cancer survivors
  • OR have a biological family member who has or had ovarian cancer

You do not need experience with or knowledge about genetic testing to participate.

To participate or learn more, please email our study team at OCStudy@kp.org

Frequently Asked Questions
 Will there be any costs to me?

There is no cost to you to participate in this study.

 Will being in this study help me?

This study will not help you personally, but we hope the results of this study will help improve care for ovarian cancer patients and their families in the future.

 What will happen if I take part in this study?

If you join the study, we will ask you to take part in a one-on-one interview that will last about 90 minutes. Your interview will take place by phone or video call at a time and date of your choice. During the interview, the study researcher will ask you questions about:

  • genetic testing,
  • the best way to communicate information about genetic testing for ovarian cancer risk,
  • and how Kaiser Permanente Mid-Atlantic States might help you in this process.

You will be given some information to review before the call. The interview will be recorded and transcribed (we will write down what was said) so that we will have an accurate record of what was discussed during the interview. Any information you provide us is voluntary, and you are free to refuse to answer any questions you do not want to answer. Anything you say that could identify you will be removed from the written transcripts.

 How will you protect my confidentiality?

All researchers sign a confidentiality pledge that requires them to keep your information private. We will not use your name in study reports or in any transcripts (written records of what was said). Instead, we will label your responses with a code number only. We will not tell your healthcare providers about your participation in this study. We will not add information to your medical record.

 Do I have to be in this study?

No, being in this study is up to you.  You are free to say no now or to leave the study at any time later.  Either way, there will be no penalty.  Your decision won’t affect the health care you receive or benefits that you are entitled to.

 Is this study a clinical trial?

No. This study is not a clinical trial.

 


Study Leads:             

                         

Cabell Jonas, PhD

Senior Research Program Consultant,
Operations Research Associate Investigator        

           

                         

 

Pim Suwannarat, MD, FACMG, CIP

Regional Chief, Genetics
Chair, Institutional Review Board

  • More information about the study can be found on our study flyer here.
  • More information about the Kaiser Permanente Mid-Atlantic States principal researcher leading this study can be found here.